About Hemophilia...

Hemophilia is a rare genetic bleeding disorder in which the blood does not clot normally. Persons with hemophilia are missing or have a low level of a protein needed for normal blood clotting. About 18,000 people in the United States are known to have hemophilia. Hemophilia usually only occurs in males, except for rare exceptions. A person with severe hemophilia means that they have less than one percent clotting factor in their system.



Monday, October 26, 2015

Longer Life Span

I read in a medical magazine recently that the hemophilia lifespan is now close to the normal average.
It really made my day because thirty-one years ago when my son, Dwight, was born the lifespan for those with hemophilia was only in the late thirties to early forties.  What amazing news!

Even though Dwight's ankles are very painful when walking from so many internal bleeds as he was growing up and he is needing surgery to fuse them both- one ankle Dwight is walking bone on bone- yet overall compared to my father and the previous generation Dwight is doing great health wise. We have so much to be thankful for.

Although Dwight has had to slow down a lot in the last six months it has enabled his creative side to come to the forefront giving him something to be proud of- beside housework :)  Here are a couple samples of his craftsmanship that Dwight personalizes and sells:











Saturday, May 2, 2015

2015


Dwight is still staying busy working at the body shop ...,



watching and keeping up with Case at our home every 
other weekend..,



and spending more time making special memories with Kara and her two kids.

Monday, January 19, 2015

2014

The year 2014 has already passed by for Dwight, who still works at a local body shop, and factors weekly to keep his bleeds under control. 
It was another year getting older..,



 having and being with Case every other weekend..,



then finding a special girl..,



and now making memories with Kara! 



Tuesday, January 28, 2014

Dwight at Christmas time



 Ho, Ho, Ho!  Here comes Santa's helper.


First we have to get the tree up..,



then get everything plugged in and make sure all the lights work.



Now where did that end go???





There I finally got it.
 


And at last all the work is rewarded with Christmas gifts.

Thursday, January 24, 2013

Winter

Christmas time with Case and William.


Helping Case assemble one of his Christmas presents,


and getting to be with Case every other weekend.


Monday, October 29, 2012

Summer Time


Summer time means lots of outdoor activities like mowing the lawn with the help of Case.
 

It also means vacation time and traveling. 
For Dwight, he took a trip up to Indiana this summer to be the best man in one of his friend's wedding.
I definitely became the mother hen when I discovered that Dwight's means of transportation was going to be his motorcycle.  It isn't that I don't trust my son, its all those other crazy drivers out there.
All too soon, early one morning, Dwight was packing up his motorcycle to leave.

  
Then he put on his helmet, sun glasses, and gloves.


The engine roared to life, Dwight hopped on..,
 

 and out the driveway he went.


Wednesday, May 2, 2012


Here is Dwight on his Honda CBR 900 RR that he drives to work each day..,


where he works as a janitor at the Byrdstown Elementary School forty minutes away from home.


Even though Dwight's motorcycle gets 50 miles to the gallon maintenance is a top priority.


Dwight with Case in the GMC pickup truck, which he uses to bring Case up to our house every other weekend.


And like all boys, Case loves trucks.  Here he is at the wheel imitating driving like Dwight.