About Hemophilia...

Hemophilia is a rare genetic bleeding disorder in which the blood does not clot normally. Persons with hemophilia are missing or have a low level of a protein needed for normal blood clotting. About 18,000 people in the United States are known to have hemophilia. Hemophilia usually only occurs in males, except for rare exceptions. A person with severe hemophilia means that they have less than one percent clotting factor in their system.

Monday, October 26, 2015

Longer Life Span

I read in a medical magazine recently that the hemophilia lifespan is now close to the normal average.
It really made my day because thirty-one years ago when my son, Dwight, was born the lifespan for those with hemophilia was only in the late thirties to early forties.  What amazing news!

Even though Dwight's ankles are very painful when walking from so many internal bleeds as he was growing up and he is needing surgery to fuse them both- one ankle Dwight is walking bone on bone- yet overall compared to my father and the previous generation Dwight is doing great health wise. We have so much to be thankful for.

Although Dwight has had to slow down a lot in the last six months it has enabled his creative side to come to the forefront giving him something to be proud of- beside housework :)  Here are a couple samples of his craftsmanship that Dwight personalizes and sells: